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13th February 2006

Pregnant heart patients at risk

Experts say that more doctors must be trained to prevent pregnant mothers with heart disease from dying unnecessarily.

A group of medical experts say a long-term investment in the training of professionals is needed to raise awareness of and boost skills in dealing with the risks of congenital heart disease (CHD) in pregnancy.

There are 125,000 women with congenital heart disease in the UK and, according to the researchers, are 100 times more likely to die in pregnancy than other mothers-to-be.

The study says pregnancy is feasible with the right support but women with CHD are more likely to suffer complications such as heart attack, stroke, and even death.

There are also risks for the baby including growth restriction, premature birth and miscarriage, as well as an increased chance of cardiac defects.

Professor of Cardiology and Adult Congenital Heart Disease at the Royal Brompton Hospital Michael Gatzoulis says "Mothers with CHD are, on average, 100 times more likely to die during pregnancy than other pregnant women especially if there are complications.

"If untreated, these can lead to a heart attack, stroke, flooding of the lungs and in some cases, sadly death."

Heart disease is one of the biggest causes of maternal death, he added.

However, the report's authors say that with the right advice from a specialist centre and careful planning of the baby's delivery, most women with CHD can successfully have children.

They say, "Prolonged and difficult labour should be avoided, and detailed continuous monitoring of the mother and foetus is mandatory.

"The principle is to manage the stress of labour in such a way that it does not exceed the woman's capacity to cope with it."

Professor Gatzoulis said 1 per cent of children are born worldwide with CHD and called for raising awareness among patients.

He said that 85 to 90 per cent of patients who had heart defects corrected as a baby, had no contact with the hospital where they had the operation.

"There should be a database of previous patients so you can track them down and make proper assessments. This is a life-long disease.

"Most women embark on pregnancy without knowing the risks and if they don't have the right support the outcome is not always desirable."

Judy O'Sullivan, Cardiac Nurse at the British Heart Foundation, said the better the care that women with CHD receive, the better the chances of good health for both mother and baby.

"We would encourage all women with CHD, especially those with complicated heart problems, who are pregnant or planning a pregnancy to seek expert medical advice to manage their own heart health and the health of their baby."

 

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