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'My son has a nut allery and it nearly killed him'

Just ten minutes after tasting cashew nut butter for the first time, Tina Burchill's seven-month-old son Thomas was in an ambulance on the way to casualty - he had suffered a life-threatening allergic reaction...

Calling the ambulance

It started as an ordinary teatime. Thomas was with his dad, eating cashew nut butter spread on bread. I was in the kitchen clearing up. Suddenly, Thomas' father was shouting for me to come quickly.

We met in the doorway. Thomas was crying and there was a small white swelling on his lips. I'd read about nut allergy and my immediate reaction was to call an ambulance, my voice shaky as I tried not to panic.

We could only wait then as Thomas' face pumped up to grotesque proportions. The short wait for the ambulance seemed an eternity. I will never forget his tiny face swollen like a balloon as he clung to me, distressed and vomiting.

At hospital, he was injected with adrenaline, anti-histamines and hydrocortisone, but it was several hours before the swelling subsided. We were sent home the next day with an emergency kit of an adrenaline injection in a 'pen" and an adrenaline inhaler that we now have to carry everywhere.

Anaphylactic shock

What my son had suffered was anaphylactic shock – a severe reaction of the immune system which can kill within minutes. His life is potentially in danger every time he eats.

Even the slightest trace of the allergen can set off a chain reaction of chemicals in the body as the immune system overreacts, leading to leaking blood vessels, bronchial swelling and a drop in blood pressure, resulting in choking and collapse. Symptoms can also include hives, faintness and unconsciousness, swelling, asthma and vomiting.

Five or six deaths from food-induced anaphylactic shock are reported every year in this country, with anaphylaxis affecting up to one million people. One in every 200 children has an allergy to peanuts alone. Statistics also show that very few children die, largely due to the vigilence of their parents.

Yet despite the increasing number of allergy sufferers, getting the correct diagnosis and treatment can be a lottery. While some parts of the country have allergists and clinical immunologists specially trained in the field, other areas do not.

As leading allergist Dr Pamela Ewan says: "Investment is badly needed – we are way behind other countries in dealing with it. Many GPs have little training or awareness and many areas are without allergy specialists, making it difficult for patients to get good advice."

Support: The Anaphylactic Campaign

For many parents, the only help available has been from the Anaphylaxis Campaign, which has spent the last six years working to raise awareness of potentially lethal food allergies. It now has 5,600 members – most of them parents of children with serious allergies.

Chairman David Reading helped to launch the campaign in 1994, following the loss of his 17-year-old daughter Sarah who died after eating a lemon meringue pie in a restaurant. He says: "She knew she was allergic to peanuts, but we didn't know it could be fatal. A lot has changed since then but people are still dying unnecessarily."

Despite extensive research, specialists are still unsure about the causes of such severe allergic reactions. Dr Ewan believes nut allergy stems from the general increase in allergic disease, coupled with a change in infant diets, with peanut butter becoming more popular in recent years.

Advice to parents

Since 1998, pregnant women and breastfeeding mothers have been advised that if there is a history of allergy in the family - including eczema, asthma and hayfever - they should avoid peanuts. Weaning information has also changed, with "at risk" families being advised to delay the introduction of peanuts.

I doubt the advice would have helped Thomas. I was avoiding feeding him peanuts anyway. I did, however, regularly eat peanut butter while pregnant and breastfeeding. Doctors cannot predict what will happen if Thomas ever eats nuts in the future. Skin tests showed a positive allergy to all nuts and a second attack is usually worse.

It is now two and a half years since he suffered anaphylactic shock, but the memory of that teatime never fades. I know that only strict vigilance will protect him.

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